I noticed a gap in the Twitter sphere for a chat for ‘Spoonies’, that is, those suffering from a chronic condition (check out Christine Miserandino’s Spoon Theory for a full explanation). So I decided to set up #SpoonieSpeak!
There are currently two chats. The first being the #HAChat run by @wegohealth which takes place every Tuesday at 3pm EST. The second being the #SpoonieChat run by @DawnMGibson on Wednesdays 8-10pm EST (this works out 12-2am UK time!). This chat was never going to be something I could feasibly be a part of!
I know from experience that going out when you have a chronic condition isn’t always easy! This was something that conversations with my ‘Spoonie’ friends confirmed.
I felt that it was important to create an environment where people could come together as friends to chat about all subjects, not just those that are ‘Spoonie’ specific.
Friday & Saturday nights are the ones where people typically go out. I decide one of these would be a great choice, as they are the times those with chronic conditions are most likely to feel left out.
From this, #SpoonieSpeak was born!
‘Because not everyone can go out on a Friday night #SpoonieSpeak is a chat for spoonies who want to feel like they’re out with friends while still in their onesies!’
So grab some snacks and your favourite beverage and join @SpoonieSpeak on Twitter every Friday 7-8pm GMT/BST! Not on Twitter? I’m hoping to set up a Facebook group for #SpoonieSpeak to provide support and positivity for people throughout the week.
You can also check out highlights of Previous Chats!
As of August 2017, #SpoonieSpeak is co-hosted by @hamrowannie. It’s great to have Annie helping me, she’s been a great support of the chat from the start.
Topic: Planning Days Out
Q1. Where do you start when planning days out? What’s most important for you to consider?
Q2. How far ahead do you start planning your day out?
Q3. How do you decide what/not to take with you when going for a day out?
Q4. What advice would you give to new spoonies for planning days out?
Topic: Coping With The Aftermath Of Difficult Appointments
Find me on:
You can also sign up for my newsletter!