I noticed a gap in the Twitter sphere for a chat for ‘Spoonies’, that is, those suffering from a chronic condition (check out Christine Miserandino’s Spoon Theory for a full explanation). So I decided to set up #SpoonieSpeak!
There are currently two chats. The first being the #HAChat run by @wegohealth which takes place every Tuesday at 3pm EST. The second being the #SpoonieChat run by @DawnMGibson on Wednesdays 8-10pm EST (this works out 12-2am UK time!). This chat was never going to be something I could feasibly be a part of!
I know from experience that going out when you have a chronic condition isn’t always easy! This was something that conversations with my ‘Spoonie’ friends confirmed.
I felt that it was important to create an environment where people could come together as friends to chat about all subjects, not just those that are ‘Spoonie’ specific.
Friday & Saturday nights are the ones where people typically go out. I decide one of these would be a great choice, as they are the times those with chronic conditions are most likely to feel left out.
From this, #SpoonieSpeak was born!
‘Because not everyone can go out on a Friday night #SpoonieSpeak is a chat for spoonies who want to feel like they’re out with friends while still in their onesies!’
So grab some snacks and your favourite beverage and join @SpoonieSpeak on Twitter every Friday 7-8pm GMT/BST! Not on Twitter? I’m hoping to set up a Facebook group for #SpoonieSpeak to provide support and positivity for people throughout the week.
You can also check out highlights of Previous Chats!
As of August 2017, #SpoonieSpeak is co-hosted by @hamrowannie. It’s great to have Annie helping me, she’s been a great support of the chat from the start.
Topic: Coping With The Aftermath Of Difficult Appointments
Q1. Difficult appointments can leave us with a variety of negative emotions. How do you deal with these?
Q2. Do you do anything after a difficult appointment to make yourself feel better?
Q3. How do you psych yourself up for your next appointment, after you’ve experienced a difficult one?
Q4. Do you have any advice to new spoonies for dealing with difficult appointments and the emotions they cause?
Find me on:
You can also sign up for my newsletter!