Preparing To Receive Test Results | #SpoonieSpeak

Preparing to receive test results can be difficult when you have a chronic illness. There are so many emotions that we experience. The uncertainty of not knowing if or what will be found. The worry that if test results are normal you’ll be accused of ‘making it up’, particularly if this is something you’ve experienced before. The inspiration for this topic came when I got such an overwhelming response from the tweet below. I realised that I wasn’t alone and felt that preparing to receive test results was a topic worth discussing with the #SpoonieSpeak community.

The ‘Preparing To Receive Test Results’ chat took place on 10th March, hosted by the @SpoonieSpeak twitter account.

Apologies to those using a screenreader. I haven’t been able to add suitable descriptions, as my fatigue is high. I will be coming back to this post as soon as possible to rectify this.

Q1. Do you find test result appointments nerve wracking? What do you find most worrying about them?

Q2. Have you ever worried that test results will be normal?

Q3. How did you stay calm before test result appointments?

Q4. How do you prepare for test result appointments (for example questions to ask), given that you don’t know what the results will be?

Chatting about preparing to receive test results with the #SpoonieSpeak community has been great fun. If you’re worried about getting test results, or are struggling to come to terms with a new diagnosis (or lack of diagnosis), please know that you aren’t alone. You can always reach out to the#SpoonieSpeak community and myself for support.

Next week’s topic is Setting Realistic Goals With Chronic Illness. We’d love it if you could join us!

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