Preparing to receive test results can be difficult when you have a chronic illness. There are so many emotions that we experience. The uncertainty of not knowing if or what will be found. The worry that if test results are … Read the rest
Managing unpredictable situations with chronic illness can be difficult. Life can be overwhelming with even the best plans. When things become unpredictable and you have a chronic illness, it can be hard to know how to cope. Especially when the … Read the rest
Managing sleep with chronic illness can be hard. Our symptoms can make it difficult to fall asleep and then wake us during the night. This can have a knock on effect on our chronic illnesses and leave us in a … Read the rest
Social media has become a part of every day life. Using social media with chronic illness has many benefits. As a teenager, I remember feeling like I was the ‘only one’ who was chronically ill. Social media was in it’s … Read the rest
I think it’s fair to say that those of us with chronic illnesses spend a LOT of time in waiting rooms. This can be very boring and at times it can be difficult to know how best to pass the … Read the rest
Advocating for care you need and deserve can be hard. Particularly when you live with a chronic illness. Unfortunately, most of us find that in order to get the right care, we have to spend a lot of time advocating … Read the rest
Explaining your illness to others can be hard. The #SpoonieSpeak community came together to to share experiences and ideas on how, and what, we share about our conditions. The chat looked at different relationships, from complete strangers, to friends and … Read the rest
A new year is the perfect time to take take a look at the things we would like to achieve and put plans into action to make them possible. So let’s see what the #SpoonieSpeak community’s hopes and plans for … Read the rest
One of the things that Blogmas taught me was that I’m able to manage to post every day. Granted, I had to let a few other things slide to be able to so so, but I did it. I’ve had … Read the rest
