Social media has become a part of every day life. Using social media with chronic illness has many benefits. As a teenager, I remember feeling like I was the ‘only one’ who was chronically ill. Social media was in it’s infancy (who remembers MSN messenger and MySpace?). As a result, I wasn’t able to make chronically ill friends who I could share experiences and tips with. Since the dawn of social media, I’ve made so many chronically ill friends. We’ve shared tips on coping with our conditions and helped each other get the right diagnosis and the right care. We’ve celebrated each other’s achievements and supported each other when things have been tough.
However, social media as with anything, also has it’s negative sides. The #SpoonieSpeak community came together to discuss the positives and negatives of using social media with chronic illness.
The ‘Using Social Media With Chronic Illness’ chat took place on 11th February, hosted by the @SpoonieSpeak twitter account.
Want to make some spoonie friends? Click on the images to be taken to the individuals twitter accounts.
Q1. As someone with chronic illness, what’s the best thing about social media?
Q2. Have you come across and difficulties when using social media as someone with a chronic illness?
Q3. How did you over come the difficulties you’ve faced?
Q4. How would you like to see social media improve to make your experience as a user with chronic illness better?
Chatting about using social media with chronic illness with the #SpoonieSpeak community has been great fun.
Next week’s topic is Managing Sleep With Chronic Illness. We’d love it if you could join us!
Missed last week’s chat? Check out the Passing Time In The Waiting Room chat highlights.
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